Updated On: 22 July, 2025 08:37 AM IST | Mumbai | Vinod Kumar Menon
It all began with a fall. Then a burn on the wrist. Confusion marked the beginning of a long, unimaginable journey: Progressive Supranuclear Palsy (PSP), a rare, aggressive, and incurable neurological disorder that steals speech, movement, and even emotion, forcing families to grieve before the final goodbye

Anjana Shah in bed, with daughter Asmi holding her, and husband Vijay Shah by her side
In the city of dreams, one family is trapped in a slow, waking nightmare. This isn’t a sudden story of loss; it’s a story of love in silence, of memories fading, and of a daughter watching her mother disappear piece by piece, until only the essence of her remains.
It all began with a fall. Then a burn on the wrist. Confusion marked the beginning of a long, unimaginable journey: Progressive Supranuclear Palsy (PSP), a rare, aggressive, and incurable neurological disorder that steals speech, movement, and even emotion, forcing families to grieve before the final goodbye.
Despite PSP's devastating impact, there is no government protocol in place for brain donation for scientific research. Families hoping to turn their suffering into service face silence, red tape, and a lack of direction.