Updated On: 13 September, 2023 12:43 PM IST | ronak mastakar
Delhi Chief Minister Arvind Kejriwal on Tuesday met 18-month-old toddler Kanav, who is suffering from a rare genetic disease, at his house in Najafgarh (Pics/PTI and Twitter)

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The boy`s family members said they have been able to raise Rs 10.5 crore for his treatment
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CM Kejriwal said in the country there are only nine such cases of the genetic disorder that the boy is suffering from

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"Kanav was born with a genetic disorder, of which there are only 9 known cases in the country. After tests, it was found that an injection from the US, worth Rs 17.5 crores, can cure this disease. Kanav`s parents contacted AAP MP Sanjiv Arora, who started a crowdfunding drive to raise the required funds. Rs 10.5 crores were raised through the crowdfunding effort and the drug was brought from the US. After treatment, Kanav`s situation has shown some improvement," Kejriwal told reporters after visiting the boy`s home
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The CM thanked those who donated money for the boy`s treatment

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"I want to thank all those who donated money, including some celebrities and MPs. I also want to thank the US-based drug manufacturer for agreeing to sell the medicine for Rs 10.5 crores," Kejriwal said
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